IPNA Workshop Agenda

IPNA Workshop Agenda

March 29 (Mon.)
IPNA Workshop
Venue: 國際會議廳
Time (Taipei, UTC+8:00) Session Theme Speaker
19:45-20:00 Video Clips (Gold Sponsor: Kyowa Kirin/Silver Sponsors: Advicenne, Amgen)
20:00-20:05 Welcome Dieter Haffner/Germany
Hui Kim Yap/Singapore
Ching-Yuang Lin/Taiwan
20:05-20:30 Global Needs for Guidelines
– Perspectives from low, middle and high-income countries; rare and common conditions; an IPNA survey
* 1 topic, 3 speakers
Chair
Melvin Bonilla/Puerto Rico
Giovanni Montini/Italy
Speaker
Olivia Boyer/France
Khalid Al-Hasan/Saudi Arabia
Pankaj Hari/India
20:30-21:20 Methodology I
1. Interpreting clinical trial results- confidence and magnitude versus P values
2. The appraisal and synthesis of evidence for guideline development
Chair
Olivia Boyer/France
Susan Samuel/Canada
Speaker
Jonathan Craig/Australia
David Tunnicliffe/Australia
21:20-21:45 Lessons from screening programs & recent clinical trials I
– Clinical trials in nephrotic syndrome
Chair
Xu Hong/China
Ali Duzova/Turkey
Speaker
Arvind Bagga/India
21:45-21:55 Coffee Break
21:55-23:10 Guidelines I
Nephrotic Syndrome

1. Management of Nephrotic Syndrome in Children: Recommendations from KDIGO
2. IPNA Clinical Practice Recommendations for the diagnosis and management of children with steroid-resistand nephrotic syndrome
3. Congenital Nephrotic Syndrome: ERKNet/ESPN consensus recommendation
Chair
Pierre Cochat/France
Arvind Bagga/India
Speaker
Keisha Gibson/USA
Agnes Trautmann/Germany
Olivia Boyer/France
23:10 End of Day 1 Dieter Haffner/Germany
23:12-23:15 Video Clips (Gold Sponsor: Kyowa Kirin)

March 30 (Tue.)
IPNA Workshop
Venue: 國際會議廳
Time (Taipei, UTC+8:00) Session Theme Speaker
19:45-20:00 Video Clips (Gold Sponsor: Kyowa Kirin/Silver Sponsors: Advicenne, Amgen)
20:00-20:05 Welcome Olivia Boyer/France
20:05-20:30 Guidelines II Nephrotic syndrome
HUS

Clinical practice recommendations on the diagnosis and management of atypical HUS: HUSi
Chair
Hesham Safouh/Egypt
Koichi Nakanishi/Japan
Speaker
Christoph Licht/Canada
20:30-20:50 Methodology II
– Patient’s perspective & patient centered outcome measures: SONG initiative
Chair
Francesco Emma/Italy
Pankaj Hari/India
Speaker
Allison Tong/Australia
20:50-21:40 Lessons from screnning programs & recent clinical trials II
– Screening programs
– Clinical trials in IgA nephropathy and vasculitis
Chair
John Mahan/USA
Kenji Ishikura/Japan
Speaker
Il-Soo Ha/South Korea
Koichi Nakanishi/Japan
21:40-21:50 Coffee Break
21:50-23:30 Guidelines III
CKD and Transplantation

1. Guidelines in the management of CKD-MBD in children: learning from KDIGO, NICE and ESPN
2. Clinical practice recommendations for treatment with active vitamin D analogues in children with CKD stages 2-5 and on dialysis
3. Position paper on the use of cincacalcet in children on dialysis: ESPN
4. Clinical practice recommendations for growth hormone treatment in children with CKD: ESPN
5. Recurrent disease after renal transplantation: ESPN, CERTAIN, ERKNet
Chair
Rezan Topaloglu/Turkey
Bradley Warady/USA
Speaker
Rukshana Shroff/UK
Justine Bacchetta/France
Jens Drube/Germany
Lars Pape/Germany
23:30 End of Day 2 Olivia Boyer/France
23:30-23:35 Video Clips (Gold Sponsor: Kyowa Kirin)

March 31 (Wed.)
IPNA Workshop
Venue: 國際會議廳
TimeTime (Taipei, UTC+8:00) Session Theme Speaker
19:45-20:00 Video Clips (Gold Sponsor: Kyowa Kirin/Silver Sponsors: Advicenne, Amgen)
20:00-20:05 Welcome Pankaji Hari/India
20:05-21:20 Guidelines IV
Tubulopathies

1. Clinical practice recommendations for the diagnosis and management of x-linked hypophosphatemia: European societies & rare diseases networks
2. Bartter Syndrome: Consensus/position paper from the ERKNet expert group for tubular disorders
3. Distal renal tubular acidosis: Consensus/Position paper from ESPN and ERKNet
Chair
Elena Levtchenko/Belgium
Il-Soo Ha/South Korea
Speaker
Francesco Emma/Italy
Karl Peter Schlingmann/Germany
Detlef Böckenhauer/UK
21:20-21:30 Coffee Break
21:30-23:10 Guidelines V
Hypertension/CAKUT

1. Hypertension: The US/AAP and EU/ESH guidelines
2. UTI: The North American recommendations
3. UTI and VUR: The Indian recommendations
4. Obstructive uropathy and renal dysplasia:ERKNeT/ESPN consensus
Chair
Khalid Al-Hasan/KSA
Admani Bashir/Kenya
Speaker
Donald Batisky/USA
Brian Becknell/USA
Pankaj Hari/India
)
Giovanni Montini/Italy
23:10-23:40 Implementation
1. Experience from SCOPE
2. Contribution from registries
Chair
Michael Sommers/USA
Paula Coccia/Argentina
Speaker
Alicia Neu/USA
Franz Schaefer/Germany
23:40-23:45 End of Workshop and Farewell Dieter Haffner/Germany
Olivia Boyer/France
Pankaj Hari/India
23:45-23:48 Video Clips (Gold Sponsor: Kyowa Kirin)

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